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15.3  Care and handling of research participants  477




                  participate in research. Furthermore, Cornell University’s IRB determined that the
                  study was not under their jurisdiction, as it was conducted by Facebook. As a result,
                  participants were not informed of their participation, which the editor considered to
                  be “not fully consistent with informed consent” (Verma, 2014). Reports of user con-
                  cern quickly spread throughout the new media (Goel, 2014), as users complained that
                  they may have been manipulated without their knowledge or consent. Subsequent
                  soul-searching in the academic literature (Fiske and Hauser, 2014; Puschmann and
                  Bozdag, 2014; Ross, 2014) examined the implications for evolving research ethics
                  in the age of social media.
                     Many issues raised by the Facebook study are thorny questions that are not easily
                  resolved. Should Facebook have informed users and obtained consent? Would that
                  have biased results, as users might have been more sensitized to positive or negative
                  content in posts? Would a design involving consent with some amount of deception
                  (see 15.3.6.1) have been more appropriate?
                     The participation of Facebook as a corporate sponsor of research complicates
                  matters further. As acknowledged in the paper, and in the Editor’s expression of con-
                  cern, Facebook is a private company and therefore not subject to the requirements of
                  the Common Rule (Verma, 2014). This raises the interesting question of corporate
                  ethics and conflicts of interest—specifically, what are the obligations of corporations
                  that conduct human subjects research that are not subject to external regulation?
                  How, if at all, did the Facebook study differ from the widely used techniques of
                  showing different web site designs to different sets of users to determine which is
                  preferred (so-called “A/B testing”? (Merritt et al., 2010)).
                     Discussions of corporate research behavior are likely to continue and evolve for
                  the foreseeable future. Not long after the publication of the Facebook paper, online
                  dating site OkCupid published a blog post describing the many ways that they have
                  experimented with manipulations of content, in the hopes of understanding how par-
                  ticipants respond to postings describing potential dates (Rudder, 2014). In contrast with
                  Facebook’s effort, these experiments did not involve academic researchers as partners,
                  and were not published in a scientific journal. Do these differences change our percep-
                  tions of the ethical implications of the work, or our interpretations of the results?
                     These questions do not have simple answers, but they do illustrate concerns that
                  most researchers would be well advised to consider carefully. Corporations such as
                  Facebook and OkCupid may be able to weather the publicity associated with these
                  potentially controversial research studies, but many academic researchers—specifi-
                  cally, those working with public funds in public in university settings—might want
                  to think twice before conducting studies that might lead participants to feel as if they
                  had not been treated appropriately.
                     Perhaps an application of the golden rule to study design might be appropriate.
                  Before conducting a study, you might ask how you might feel if asked to participate,
                  or, as in the Facebook study, you later found that your actions might have been part
                  of the study without your knowledge. If you decide that you might not be comfort-
                  able, others might have the same reaction, and you might consider revising your
                  study design.
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