Page 39 - The Importance of Common Metrics for Advacing Social Science Theory and Research
P. 39

The Importance of Common Metrics for Advancing Social Science Theory and Research: A Workshop Summary
  http://www.nap.edu/catalog/13034.html

            MEASUREMENT IN THE SOCIAL SCIENCES                            27

            ment of medical care output is highlighted by the fact that current measure-
            ment approaches result in reported negative productivity growth in the U.S.
            medical care industry. This is an area in which improved measurement does
            not depend on economic theory. What are needed are measures of medical
            outcomes, like those Fryback discussed. Triplett added that there are many
            cases in economics in which improvement of an economic measurement
            depends on getting information from other social and natural sciences.
               In  her  discussion,  Kathleen  Cagney  (University  of  Chicago)  distilled
            some of the main points from Fryback’s presentation and focused on chal-
            lenges and opportunities related to the measurement of HRQoL. Turning
            attention to the three classes of HRQoL measures—generic health indices
            and  profiles,  disease-specific  measures,  and  preference-based  measures—
            and  their  interplay,  Cagney  considered  how  generic  and  disease-specific
            measures focus on the presence, absence, severity, frequency, or duration of
            symptoms and how these are drawn from psychometric theory, whereas the
            preference-based measures relevant for assessing preferences of individuals
            for alternative health states or outcomes are drawn from economic theory
            and ideas of comprehensiveness and comparability.
               Cagney referred to the seminal work of Patrick and Erickson (1993),
            which defines HRQoL as the value assigned to duration of life as modified
            by impairments, functional states, perceptions, and social opportunities that
            are influenced by disease, injury, treatment, or policy. In contrast, the defini-
            tion offered by the Centers for Disease Control and Prevention assumes that
            HRQoL is synonymous with health status but also encompasses reactions
            to coping with life circumstances.
               Cagney referred also to the objectives of health status assessment as
            outlined by Patrick and Erickson (1993): to discriminate among persons at
            a single point in time, to predict some future outcome or results of a more
            intrusive  or  costly  criterion  measure,  and  to  measure  change  over  time
            (e.g., cohort study). Consistent with the tenor of Fryback’s presentation,
            Cagney shared Colleen McHorney’s (1999) observation that the “field of
            health status assessment is regarded more for how it quantifies and validates
            health status indicators than for how and why it conceptualizes health.”
            Cagney considered the SF-36 a standard in health status assessment. It is
            responsive to 44 disease conditions, and it has been translated into more
            than 50 languages. However, as McHorney has pointed out, there are 8,360
            different ways to score 50 on the SF-36 physical functioning scale, which
            is only half of the SF-36 measure. What is important in Cagney’s view is to
            consider the progression of disease over the life course and how one shifts
            from the initial position of health decline to a later state of physical frailty.
               Cagney summarized a number of challenges associated with the HRQoL
            measure. She highlighted Fryback’s sense that HRQoL scores describe but
            do not actually value health, a goal that may be informed by the work of







                      Copyright © National Academy of Sciences. All rights reserved.
   34   35   36   37   38   39   40   41   42   43   44